Pumping Marvellous Patient Forums
We are delighted to announce that we will be holding our first patient forums in October 2010. We will be holding two initial forums, one starting at 2.00pm on the 6th October 2010 at the Accrington Victoria Hospital and the other on the 13th October 2010 starting at 7.00pm in the evening at the Accrington Victoria Hospital.
The idea behind the evenings is to help patients deal with heart failure and share best practice, in other words share our ideas, therefore best practice includes patient ideas and health care professional ideas. This is not a lecture or a presentation this is the Heart Failure patients opportunity to learn some new ideas about their own care.
We expect the Heart Failure Team, members of nursing staff from the CCU ward at the Royal Blackburn Hospital, physiotherapists, experts from the pharmacy and doctors as well to attend alongside the Pumping Marvellous Team. The clinicians will be listening to the patients who will be bouncing their ideas off back of the clinicians.
We would also suggest you bring your nominated carer along as they obviously have a significant role to play.
You will find that it is a great way to make you an expert at your own condition.
For further information please contact pumping marvellous.
Twitter is a great way of connecting with the Pumping Marvellus community. It allows patients to connect with patients from other NHS Trusts. These are the benefits –
It’s free to interact with Pumping Marvellous
It is run by patients with Heart Failure specifically for patients with Heart Failure
It is a great wealth of resource for patients, carers and families effected by Heart Failure to understand the condition better and come to terms with it
NHS trusts and Heart Failure Teams should direct their patients to Pumping Marvellous as a way of communicating differently with their patients, in other words we don’t talk like doctors and nurses.
Welcome to Pumping Marvellous.
This is a site run by patients for patients.
The site is designed to help inform and educate those who have Heart Failure, their Carers and anybody who would like a non medical viewpoint of what it is like to live with and manage Heart Failure.
As patients of the East Lancashire Primary Care Trust in the UK we are backed up by a world class group of clinicians ranging from Consultant Cardiologists whose specialism is Heart Failure, experienced nurses who work on the cardiac wards at the Royal Blackburn Hospital, dietitians and physiotherapist who specialise in diet and exercise and finally Angela Graves who is the Heart Failure Nurse Manager and her team of experienced Heart Failure nurses.
You will find our approach and discussions both formal and chatty and we would be really happy to answer any questions you may have. We can’t not help get technical sometimes but there is no other way to describe what we need to communicate to you.
Enjoy the site and start to learn about Heart failure from a different perspective.